Jack- complete with a black eye from when Ben wanted to play catch and threw a real baseball at Jack's face.
Mairead and Audrey
Ben and Audrey had a great time together. They have a lot in common- mostly being professionals at causing mischief.
Maddie built a great 'pillow river' to jump in to while Jack made some calls.
Ben and Audrey. They could almost be twins!
Maddie is super cute and such a smartie! Mairead was much too busy exploring this new place and couldn't really stop to pose for pictures.
Thanks, Sarah, Maddie, and Audrey! We had a great time!
In other news...I went back into battle with my insurance company and got them to cover the neuropsych evaluation that we have set up for Mairead at the end of the month(yay, me). I am in the process of getting documentation of this coverage so that it cannot be disputed later, and I spoke with real, live, people who confirmed that it would be fine. I feel like I won a war.
As far as school goes, I spoke with the mediator Tuesday morning (she was very nice) about my goals, ideal situation for Mairead, etc. That was about 8:30.
At 12:30, someone from the school dept called to get more info about Mairead, her preschool program, what she is getting for OT, etc, what I would like to see, etc. She asked questions about her current school situation, her socialization, how she is doing, etc. I very honestly answered that things are not going well- she doesn't have any real friends, other girls try to play with her but she cannot respond or have conversations, so they lose interest. Other kids are already noticing and pointing out that she is different, etc. It's awful to know that your child doesn't have a friend. She doesn't realize it yet, but she will. Her teacher told me, though, that when it is time to go outside or go to circle time, some of the little girls will grab Mairead's hand and say, "Come on, Mairead!" and try to help her. That warmed my heart.
Anyway, the woman at the public schooltold me about this glorified playgroup run by the schools and facilitated by pre-K teachers. It meets three afternoons a week and does not have any kind of SpEd component. I have a suspicion that they were trying to placate me with that, but that is just not what Mairead needs.
So, they are going to send someone out to observe her at preschool. I was encouraged by this because, honestly, I don't see how ANYONE, a professional educator in particular, could see her in a classroom full of other kids and not clearly see her glaring need for extra support. I hope this is the case.
I am nervous, though, that they will send someone out to find evidence to use against us (ie, her strong academic skills, etc). I hope this is not the case, but I have not seen anything from them to indicate that they are actually willing to help us.
I am wondering if they got a phone call from the mediator and realized that I am not going to go away, and are now trying to put some steps in place to avoid mediation? I have no proof of this, etc, but it seems coincidental that the mediator called this morning and the schools called four hours later.
I am happy that things are moving again and that someone will actually SEE her and get a better picture of her, but I am trying not to get my hopes up in case this doesn't work. Please send us prayers and good thoughts that it does!
She is making such great progress and we can see it every day. There are still so many things that are hard for her, and it's hard to watch those things. For example, Mairead's class made little turkeys that are now hanging in the windows. They must have done a lesson about being thankful and the teachers wrote "Susie is happy for Elmo" or whatever on each one. Know what Mairead's says?
Mairead is happy for .
Right. It's blank. Because she did not understand what it means to be thankful and could never spontaneously answer a question like 'what are you thankful for?' Hers is is the only one without something. Just about broke my heart to see it.
Hoping that a visual would help, I had her watch the Blues Clues 'Thankful' episode. When it ended, I asked, 'what is Steve thankful for?" She named everything he said in the show. I said, "I am thankful for Mairead. What is Mairead thankful for?" She looked out the window and said, "I thankful trees and leaves and colors."
I asked, "Are you thankful for Daddy?" She got all excited and said, "I thankful for.... Jack and Ben!!!!" I just about cried. I said, " great job, what a good girl!" And she jumped up and down yelling, "I thankful for Mom!!!"
That's all I needed.
Thanks for reading- we hope that things are moving in the right direction for us now. The people at her current preschool have been amazing at trying to help in any way they can, and her former EI teachers are still helping us, too. We are so lucky to have these great people in our lives.
__________________
In other news...I went back into battle with my insurance company and got them to cover the neuropsych evaluation that we have set up for Mairead at the end of the month(yay, me). I am in the process of getting documentation of this coverage so that it cannot be disputed later, and I spoke with real, live, people who confirmed that it would be fine. I feel like I won a war.
As far as school goes, I spoke with the mediator Tuesday morning (she was very nice) about my goals, ideal situation for Mairead, etc. That was about 8:30.
At 12:30, someone from the school dept called to get more info about Mairead, her preschool program, what she is getting for OT, etc, what I would like to see, etc. She asked questions about her current school situation, her socialization, how she is doing, etc. I very honestly answered that things are not going well- she doesn't have any real friends, other girls try to play with her but she cannot respond or have conversations, so they lose interest. Other kids are already noticing and pointing out that she is different, etc. It's awful to know that your child doesn't have a friend. She doesn't realize it yet, but she will. Her teacher told me, though, that when it is time to go outside or go to circle time, some of the little girls will grab Mairead's hand and say, "Come on, Mairead!" and try to help her. That warmed my heart.
Anyway, the woman at the public schooltold me about this glorified playgroup run by the schools and facilitated by pre-K teachers. It meets three afternoons a week and does not have any kind of SpEd component. I have a suspicion that they were trying to placate me with that, but that is just not what Mairead needs.
So, they are going to send someone out to observe her at preschool. I was encouraged by this because, honestly, I don't see how ANYONE, a professional educator in particular, could see her in a classroom full of other kids and not clearly see her glaring need for extra support. I hope this is the case.
I am nervous, though, that they will send someone out to find evidence to use against us (ie, her strong academic skills, etc). I hope this is not the case, but I have not seen anything from them to indicate that they are actually willing to help us.
I am wondering if they got a phone call from the mediator and realized that I am not going to go away, and are now trying to put some steps in place to avoid mediation? I have no proof of this, etc, but it seems coincidental that the mediator called this morning and the schools called four hours later.
I am happy that things are moving again and that someone will actually SEE her and get a better picture of her, but I am trying not to get my hopes up in case this doesn't work. Please send us prayers and good thoughts that it does!
She is making such great progress and we can see it every day. There are still so many things that are hard for her, and it's hard to watch those things. For example, Mairead's class made little turkeys that are now hanging in the windows. They must have done a lesson about being thankful and the teachers wrote "Susie is happy for Elmo" or whatever on each one. Know what Mairead's says?
Mairead is happy for .
Right. It's blank. Because she did not understand what it means to be thankful and could never spontaneously answer a question like 'what are you thankful for?' Hers is is the only one without something. Just about broke my heart to see it.
Hoping that a visual would help, I had her watch the Blues Clues 'Thankful' episode. When it ended, I asked, 'what is Steve thankful for?" She named everything he said in the show. I said, "I am thankful for Mairead. What is Mairead thankful for?" She looked out the window and said, "I thankful trees and leaves and colors."
I asked, "Are you thankful for Daddy?" She got all excited and said, "I thankful for.... Jack and Ben!!!!" I just about cried. I said, " great job, what a good girl!" And she jumped up and down yelling, "I thankful for Mom!!!"
That's all I needed.
Thanks for reading- we hope that things are moving in the right direction for us now. The people at her current preschool have been amazing at trying to help in any way they can, and her former EI teachers are still helping us, too. We are so lucky to have these great people in our lives.
__________________
2 comments:
I love the part when Mairead said she's thankful for you (just try to remember this moment when she's 16 and telling you to leave her alone). We need to get our kiddos together for a playdate soon!
I hope things work out soon. What a pain ~ keep fighting. I've got some boxing gloves here, I'd be happy to send them to you! lol
We had our CPSE meeting the other day and I'd hate to tell you how it went. I'll blog about it soon.
Just today, Nathan's teachers were asking the kids about their family and who lives in their house. Obviously, Nathan has no idea what a house is, but when they asked him and helped him a bit he said "OPPER!" That's Chopper, our dog in Nathan-speak.
They'll get it ~ when they're ready. On their schedule, not ours.
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